One Month

Today my daughter said ‘It’s been a month.’ 

Hard to believe and yet we are still just so fresh and so new to everything.  We have sought out support (blogging, the DOC and attended the JDRF walk) but still sometimes it feels very alien and lonely.  She is such a trooper with everything and yet I still feel like I am waiting for … something? 

I just want to wake up and all this be a nightmare and not real. 

One month later it’s setting in that that will not happen. 

Day 7 DBlog Week: My Favorite Things

This week I’ll be participating in D Blog week.

Today’s topic:

My Favorite Things: As we wrap up another Diabetes Blog Week, let’s share a few of our favorite things from the week. This can be anything from a #DBlogWeek post you loved, a fantastic new-to-you blog you found, a picture someone included in a post that spoke to you, or comment left on your blog that made you smile. Anything you liked is worth sharing!

I missed yesterdays’ post because we attend our local JDRF walk and I didn’t have time to post.  We didn’t participate as a team this year, we mostly attended to see the vendor and info booths and get support. We are considering starting a team for next year because it was an awesome event and a great way to connect to the Type 1 community around here.

I think it really helped my daughter to see others going about life with type 1 and the freebies didn’t hurt either.  I am trying to encourage her to go to a special camp this year and I think she is close to saying yes.

Being apart of DBlog Week has been awesome.  I tried to read many of the post and gather as much information as possible.  I have bookmarked many blogs to revisit and keep up with.

Day 5 DBlog Week: Diabetes Life Hacks

This week I’ll be participating in D Blog week.

Today’s topic:

Diabetes Life Hacks: Share the (non-medical) tips and tricks that help you in the day-to-day management of diabetes.  Tell us everything from clothing modifications, serving size/carb counting tricks to the tried and true Dexcom-in-a-glass trick or the “secret” to turning on a Medtronic pump’s backlight when not on the home-screen (scroll to the bottom of this post). Please remember to give non-medical advice only! (Thank you Rachel of Probably Rachel and Kelley of Below Seven for this topic suggestion.)

I’ve been trying to come up with something for this, but three weeks in I have can’t think of many hack we would know. A few things we do that may or may not be right and work for us in the long run:

  •  Stock up on single serving peanuts for snack at school (11g)
  • I bought a plain black crossbody purse for carrying supplies but she prefers taking it in her lunch box to school, she will have to use the purse for field trip next week and other times we go out.
  •  Not to overdo pepperoni (or any free proteins)
  • My daughter carries her log book with her too so she has all her number with her, I log them daily to the dr./hospital site.  We’ve been looking for a good app to do this but haven’t found one yet.

Otherwise we just keep plugging along.

I will enjoy reading other hacks though.

 

 

 

 

Day4 DBlog Week: Mantras and More

This week I’ll be participating in D Blog week.

Today’s topic:

Mantras and More: Yesterday we opened up about how diabetes can bring us down. Today let’s share what gets us through a hard day.  Or more specifically, a hard diabetes day.  Is there something positive you tell yourself?  Are there mantras that you fall back on to get you through?  Is there something specific you do when your mood needs a boost?  Maybe we’ve done that and we can help others do it too? (Thanks to Meri of Our Diabetic Life for suggesting this topic.)

Tell my daughter “It’s not your fault”

Make her laugh

Pray

Those are the things I’ve been doing everyday.

DBlog Week Day 1

This week I’ll be participating in D Blog week.

Today’s topic:

Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. Are you passionate about 504 plans and school safety? Do diabetes misconceptions irk you? Do you fight for CGM coverage for Medicare patients, SDP funding, or test strip accuracy? Do you work hard at creating diabetes connections and bringing support? Whether or not you “formally” advocate for any cause, share the issues that are important to you.

I am new to this but it’s God’s timing that this week is happening so soon into our journey with Type 1. I hope to read other blogs and get some good information from them. I am learning that I am really going to have to be an advocate for my daughter. My first meeting with the school I thought was to create the 504 plan, but it was really just to inform the teachers/nurse and start a health plan. Almost 3 weeks later and we still don’t have a formal 504 plan and there is only 2.5 weeks of school left. I wouldn’t worry but there is a field trip and I really want my daughter to go without hassle. Also one nurse at the school (the one who texted me and updated me daily) took a new job and had to leave last Friday, again with only 2.5 weeks left. So that’s frustrating. But I have faith it will work out and my daughter is really doing well. We are going to attend a JDRF walk this weekend to see what it’s about and hopefully meet other local’s to connect with. We are looking forward to that. I am trying to get my daughter interested in attending a Type 1 camp in the state but she’s not sure. I am hoping that by going to the walk this weekend, she will become more interested.

scared and confused

Scared and confused
wondering why us, why now
yes it can be worse
yes it can be managed
yes it just sucks
i don’t feel strong enough
but i have to be for her
i don’t want to tell her my fears
i don’t want to tell anyone
but it hurts to hold it in
i pray cause i need to tell someone
i know i should not worry or but rely on Jesus
i struggle with doing that everyday
sometimes i can forget or not think about it
but then i feel guilty for not thinking about it
i still don’t know enough about it
the things i read scare me more
i have trouble focusing on anything and the thoughts bounce around my head
work, worry, home, worry, sleep, worry, check, worry
plan, plan, plan
wondering why us, why now
scared and confused
Jesus is calling ‘Don’t be so hard on yourself…Trust me, and watch to see what I can do.’