Not connected

When my daughter was diagnosed it was terrifying. I didn’t know anything about what was going on and didn’t have anyone to share experiences with.

As a techie, I immediately got online looking for info and found lots, maybe too much, but I still was looking for a deeper connection on sharing information so I started this blog hoping to find that.

It’s not working.

And with so many other activities that are vying for my attention there is no one to blame but myself.

However it is frustrating that finding out some information has been so difficult.

Like I heard about nightscout and loved the concept but it only seemed to apply to the dex and we already had the medtronic system … now I am hearing that it does work for medtronic but I already shelled out the money for the MiniMed connect.

The connect is a great concept but not geared to the caregiver which is what I am and what we need right now.

There is no app for the caregiver, only a mobile site that requires a log in Every. Time.  Seriously? at 2am this is not fun. Now seeing it on the website is pretty good which is fine at work but when I really need it is at night, and that not so much. There really needs to be an app for caregiver like the user.

And the connect is not really easy for a middle school child to keep close by…the hole that I guess is supposed to be used to attach to something is too small for most things…it would be great if the tubing could fit thru it or a carabiner.  I guess I need to buy her a fitbelt to store it all.


3 thoughts on “Not connected

  1. I sure understand the problem. I use medtroinc and a Dexcom and would love for them to communicate. . I believe we are in a transition period with data interoperability I believe we may be there for years to come. When something important is out of sync. Parent of a person with diabetes is definitely the toughest job I know.

  2. I’m sorry to hear things are so frustrating. 😦

    I’ve been trialing the MMConnect for over a month, and still using it now. I put a keyring through the hole, which then allows me to attach it to anything else. For example, the keyring can then attach to the tubing!! But my favorite way to carry it is attached to a cell phone charm hook. I can email you a picture, if you’d like, just let me know!!

    Also, I gave them the same feedback about the need for an app for caregiviers, and especially the need for it to remember caregiver information so you don’t have to log in each and every time. I believe they are working on fixing that. That’s a big reason why I was thrilled to trial the system – because I knew I could report back my loves and don’t loves straight to Medtronic!!

  3. Thanks Karen, It’s so cool that you get to test stuff out – I think I would so happy with a caregiver app. I’ve been trying to find something that would work for her to carry it easier, I am so afraid she will lose it. I’ve not seen a cell phone charm hook so a picture would be great. Do you still have my email?

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